Posted by Michael Wonder on 20 Aug 2018
Treatment funded in Australia, but New Zealand brother misses out
21 August 2018 - James McGoram says the genetic disease he has is yet to affect his day-to-day life but is beginning to affect his heart.
An Auckland family living with a rare genetic disease is pushing for treatment that helps slow its progression to be made available in New Zealand.
James McGoram and his mother Liz Hunt were diagnosed with Fabry disease about eight years ago.
