14 June 2017 - Some of Australia’s sickest kids suffering a rare medical condition known as Morquio A Syndrome will now get access to a life saving medicine for free, saving their families around $400,000 a year.
The Turnbull government will today announce it will spend $44 million over five years to list Vimizim on the Life Saving Drugs Program from 1 August.
The drug will dramatically increase life expectancy for sufferers who on average live only until the age of 25.
It is only the 13th time a drug has been added to the Life Saving Drugs Program and will help 20 kids around Australia.