Posted by Michael Wonder on 29 Jan 2025
Von Hippel-Lindau disease drug Welireg listed on PBS slashing cost by $11,000 a month for patients
28 January 2025 - The treatment for Simon Goodrich’s disease has been costing $12,000 a month, but there has been a huge development.
If the best things in life are free, the next best things are the modern medical strokes of genius, giving people a chance to live longer.
In early December, Welireg was quietly listed on the PBS. Well quiet for most, but it’s also life-altering for about 300 Australians who live with the genetic condition VHL or von Hippel-Lindau disease.
