NICE provides first scientific advice on patient preference study design

14 February 2019 - The NICE Scientific Advice team, working with the Science Policy and Research team at NICE, has provided ...

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Cystic fibrosis patients lobby Vertex to drop drug prices

28 January 2019 - Healthcare professionals and patient groups have written to Vertex’s CEO Jeffrey Leiden in a bid to ...

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My Health Record enshrines choice

24 January 2019 - A change in the law enabling people to delete permanently their My Health Record, should strengthen ...

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Citizens ask - scientists answer: the IQWiG sets four new topics for HTA reports

23 January 2019 - Citizens, patients and medical experts: selection of topics with a sense of proportion ...

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Tauranga women fighting cancer, and fighting the system

19 January 2019 - Two Tauranga woman, each living with a terminal diagnosis, are calling for an independent inquiry into ...

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Patient groups fail to declare financial interests during NICE assessments

16 January 2019 - Patients’ groups involved in assessing treatments for the NHS often fail to disclose their financial interests, ...

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Pharmaceutical companies spent $34m on patient advocacy groups, research finds

16 January 2019 - Money often spent while companies had drugs ‘under review for public reimbursement’ through PBS. ...

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As health insurance premiums rise again, consumer focus will be on value

19 December 2018 - The average 3.25 per cent rise in health insurance premiums announced today brings a respite from ...

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Our door is open: FDA puts patients first

18 December 2018 - We believe patients are experts when it comes to their health conditions.  ...

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How pharma companies try to use funding to sway patient advocate groups

21 October 2018 - Like many patient advocacy groups, the Canadian Spondylitis Association – which is focused on arthritis in the ...

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The FDA announces Patient Engagement Advisory Committee meeting on utilising real world data from patient-driven platforms that connect and empower patients

21 September 2018 - On 15 November 2018, the FDA’s Patient Engagement Advisory Committee will hold its second public meeting ...

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Eli Lilly CEO: why consumers are key to bringing down health care costs

27 August 2018 - For all of us who want better value in health care, seeing Apple, Amazon, and other ...

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Ensuring patient voices are heard: how patients can contribute to the CADTH Symposium

24 August 2018 - This webinar will outline the process for submitting abstracts and offer tips and ideas to increase the ...

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The $30 billion in health costs eating a hole in your pocket

15 August 2018 - Australians are spending nearly $30 billion on out of pocket health expenses a year, according to ...

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'There will be a breach': Labor vows to fix My Health Record

14 August 2018 - The federal opposition has pledged to fight for wider changes to the government's electronic health records ...

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