Ethical and legal considerations in social media research for health technology assessment: conclusions from a scoping review

20 October 2023 - The objective was to identify and describe the published guidance and current academic discourse of ethical issues ...

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Patient and citizen participation at the organisational level in health technology assessment: an exploratory study in five jurisdictions

8 August 2023 - While patient participation in individual health technology assessments has been frequently described in the literature, patient and ...

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ICER launches a patient council to amplify the patient voice in value assessment

11 July 2023 - Patient Council will advise ICER on engaging with patient groups while also identifying strategies to communicate ...

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PHARMAC welcomes Myeloma NZ as first patient advocacy group to present to PTAC

21 November 2022 - Myeloma New Zealand presented directly to PHARMAC’s Pharmacology and Therapeutics Advisory Committee (PTAC) on Thursday, making ...

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Patient centred health technology assessment: a perspective on engagement in health technology assessment by three patient organisations and a health technology assessment body

20 October 2022 - Patient engagement in health technology assessment has become increasingly important over the past 20 years.  ...

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The patient voice – the value of patient-reported outcomes in HTA

4 August 2022 - The patient’s voice is increasingly important in securing access for therapies in markets and demonstrating how ...

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FDA official: patients play an increasing role in rare disease drug development

1 August 2022 - Patients have a critical role in drug development, from identifying unmet medical needs to assessing meaningful ...

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Pressured by patients, FDA reviews ALS drug with modest data

25 March 2022 - The FDA meets next week to review a closely watched drug for ALS, or Lou Gehrig’s ...

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Mentoring as a potential means to assist consumer representatives contribute effectively to the assessment of health technologies in Australia: a pragmatic review

7 February 2022 - This project was implemented on behalf of the Health Technology Assessment Consumer Consultative Committee to explore training ...

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Analysis of consumer comments into PBAC decision-making (2014–9)

4 February 2022 - Our objective was to analyse and review consumer comments in the PBAC's decision-making process. ...

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Bringing a consumer perspective to clinical advice

19 October 2021 - PHARMAC is making changes to the way its advisory committees work to strengthen the input of ...

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Consumers to have more say on medicine access issues

7 September 2021 - Consumer involvement in Australia’s medicines choices has been further strengthened under a new strategic agreement Medicines ...

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How to balance the patient voice atop the shifting plates of HTA

3 August 2021 - The tectonic plates of healthcare technology assessment have shifted – but where does the patient voice ...

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Patient advocacy organisations and FDA drug approval: lessons from Aduhelm

23 July 2021 - In the wake of last month’s controversial FDA approval of Biogen’s Aduhelm, Alzheimer’s Association CEO Harry ...

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How to integrate evidence from patient preference studies into health technology assessment: a critical review and recommendations

15 July 2021 - Health technology assessment agencies vary in their use of quantitative patient preference data and the extent to ...

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