Health Technology Assessment Consumer Consultative Committee March 2019 meeting communiqué

20 May 2019 - A communiqué from the March 2019 meeting of the HTA Consumer Consultative Committee has been published. ...

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Keeping up the PACE at the Scottish Medicines Consortium

26 March 2019 - There are many ways that patient centricity could be delivered when doing a health technology assessment. ...

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Toward a strategy to involve patients in health technology assessment in Spain

14 March 2019 - The aim of this study was to develop a feasible and effective strategy to involve patients in ...

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Patient advocacy groups in Canada with ties to pharma are big boosters for government coverage

5 March 2019 - As the interplay between the pharmaceutical industry and patient advocacy groups undergoes stepped-up scrutiny, a new ...

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Patient experience data and bias — what ratings don’t tell us

28 February 2018 - Although patient-experience data are important to U.S. health care organisations, the best way to interpret them remains ...

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The FDA's Oncology Center of Excellence — quantifying the patient experience

23 February 2019 - Cancer therapies are typically evaluated based on their ability to control the growth of a tumor ...

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Updates for patients and communities​

20 February 2019 - After spending the fall listening to patient groups and exploring how other organisations have involved patients ...

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My Health Record reflects 'new consensus', says CEO Tim Kelsey

19 February 2019 - The government's controversial My Health Record was part of a "new consensus" on digital health, said ...

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NICE provides first scientific advice on patient preference study design

14 February 2019 - The NICE Scientific Advice team, working with the Science Policy and Research team at NICE, has provided ...

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Cystic fibrosis patients lobby Vertex to drop drug prices

28 January 2019 - Healthcare professionals and patient groups have written to Vertex’s CEO Jeffrey Leiden in a bid to ...

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My Health Record enshrines choice

24 January 2019 - A change in the law enabling people to delete permanently their My Health Record, should strengthen ...

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Citizens ask - scientists answer: the IQWiG sets four new topics for HTA reports

23 January 2019 - Citizens, patients and medical experts: selection of topics with a sense of proportion ...

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Tauranga women fighting cancer, and fighting the system

19 January 2019 - Two Tauranga woman, each living with a terminal diagnosis, are calling for an independent inquiry into ...

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Patient groups fail to declare financial interests during NICE assessments

16 January 2019 - Patients’ groups involved in assessing treatments for the NHS often fail to disclose their financial interests, ...

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Pharmaceutical companies spent $34m on patient advocacy groups, research finds

16 January 2019 - Money often spent while companies had drugs ‘under review for public reimbursement’ through PBS. ...

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