B.C. family nearing finish in race to raise $2.8 million to treat baby's rare disease

CBC News

8 August 2020 - Parents hope funds will pay for expensive therapy not approved in Canada for type 1 spinal muscular atrophy.

A family in Surrey B.C. hopes to raise enough money to pay for a possibly life-changing but pricey therapy for their baby boy.

One-year-old Aryan Deol struggles with muscle weakness and limited mobility. His parents say he relies on the assistance of a tube to eat and a machine to breathe, and he cannot sit up on his own or hold his head up.

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Michael Wonder

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Michael Wonder