Posted by Michael Wonder on 27 Aug 2019
Family’s joy at access to drug for son
27 August 2019 - A Bunbury mother says she has more hope for her son’s future following a recommendation to list a life-changing drug for children aged two to five with cystic fibrosis on the Pharmaceutical Benefits Scheme.
The Pharmaceutical Benefits Advisory Committee’s recommendation last week to fund Orkambi, a $250,000-a-year drug, could give Taryn Barrett’s four-year-old son Connor 23 extra years of life.
It comes after the drug was made available for ages six and up a year ago, when Mrs Barrett and her family of five vowed to continue their arduous and inspiring fight.
