Posted by Michael Wonder on 02 Nov 2022
Forget a Christmas miracle - PHARMAC consults on making the ultimate sacrifice
2 November 2022 - Today PHARMAC released a discussion paper titled Funding of Paediatric Cancer Treatments in New Zealand.
As alluded to in the paper, PHARMAC have released this document, partly in response to the May 2020 case brought to the Human Rights Commission by Patient Voice Aotearoa Trustee, Fiona Tolich.
The case centred on saving the lives of 35 children in New Zealand with spinal muscular atrophy (the leading cause of genetic death in infants), whose treatment remained a high priority but unfunded.
