'Heartbreaking': Alberta families describe waiting for life-changing drug to be made available in Canada

CTV News

17 July 2020 - More families are hoping a one-time treatment option for a rare condition will be made available in Alberta – while their young children still have time to see its benefits.

Kaysen Martin turns two years old on Friday.

A fundraiser by his family to afford Zolgensma – a one-time gene replacement therapy proven to halt and in some cases reverse the effects of spinal muscular atrophy – has nearly reached $1 million.

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Michael Wonder

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Michael Wonder