Life-changing drug Spinraza still not covered for many Canadians with spinal muscular atrophy

Global News

4 July 2019 - For several hundred Canadians with spinal muscular atrophy, Spinraza is a drug that means the difference between life and a slow, debilitating death. But in many parts of Canada, the incredibly expensive drug is not covered by provincial drug plans.

Currently, four provinces will pay for the therapy: Quebec offers coverage for all spinal muscular atrophy patients, while Alberta, Saskatchewan and Ontario are providing coverage for patients under the age of 18 (older patients are also able to apply for coverage on a case-by-case basis).

Eleven year old Evan Palmer says he broke down when he learned last month that the Alberta government will now cover his therapy.

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Michael Wonder

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Michael Wonder