Posted by Michael Wonder on 23 Aug 2019
‘Life saving’ news for Gold Coast family after little Beau allowed to take drug Orkambi to slow cystic fibrosis diagnosis
23 August 2019 - When this Gold Coast girl blew out candles for her 10th birthday yesterday, she did not wish for a pony, toys or even lollies — she wanted a cure for her little brother.
When Aleya Andersen blew out candles for her 10th birthday yesterday, she did not wish for a pony, toys or even lollies.
She wanted a cure for her little brother Beau.
And last night, she got the best birthday present she has ever received.
The PBAC yesterday recommended the Federal Government cover the $200,000-a-year cost of a “pink wonder drug” that increases the life of Cystic Fibrosis suffers by up to 23 years.
