26 July 2020 - Seventeen-year-old Rotorua teenager Osiris Daniels has been living in isolation his entire life, a necessary requirement when you've got cystic fibrosis.

Cystic fibrosis is a life-threatening disease that affects the lungs and digestive system. It also claimed the life of Osiris' older sister Santana at just 21. Their mother Trish doesn't want to bury another child, and is fighting to get access to the drugs that could prolong her son's life.

"My main focus is him and only him and how am I going to keep him alive. He's at an age where I'm scared that I'm going to lose him."

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