Posted by Michael Wonder on 23 Jul 2019
Mum needs $100,000 to treat baby son with infantile hypophosphatasia
23 July 2019 - A baby boy will only live for a few months without a $100,000 medication that is not funded in New Zealand.
Kaan Hunter was diagnosed with an extremely rare and fatal bone condition, infantile hypophosphatasia, shortly after his birth.
Mother Tracey Roberts, 26, said without medication, the now one-month-old's life expectancy was only four to six months.
