Posted by Michael Wonder on 05 Sep 2023
Mum vows to keep pushing for fenfluramine PBS listing for Dravet syndrome, a severe form of epilepsy
5 September 2023 - Families calling for greater access to a medication that helps manage a severe form of epilepsy have been left "desperate" and disappointed after being told it has not been recommended for addition to the PBS.
West Gippsland mother of three Brooke Wrigley said her youngest daughter, Everly, was four months old when she had her first seizure.
