Obama extends controversial program for rare pediatric drugs

Stat News

30 September 2016 - Despite objections from his own regulators, President Barack Obama signed into law a bill on Friday that will briefly extend a voucher program that rewards drug makers for rare pediatric medicines.

As a result, the program will run through to 31 December while Congress attempts to further extend the effort for another few years. The focus will now turn to tucking such an extension into the 21st Century Cures Act, a sweeping piece of health care legislation that must still be negotiated by the House and Senate.

“This is important because if he hadn’t signed this extension, there would have been a gap in the program,” said Nancy Goodman, who is executive director of Kids v Cancer, a patient advocacy group. “And we need to maintain incentives for companies to develop these types of drugs.”

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Michael Wonder

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Michael Wonder