Posted by Michael Wonder on 28 Mar 2018
Parents take battle for life saving drug to Parliament
28 March 2018 - Six-year-old Violet Rickard sometimes asks her mother if she’s going to die.
She also wonders why she can no longer take the lids off her Textas so she can colour with her friends, raise her eyebrows, or simply itch her own feet.
For Anna, 36, her daughter’s questions are heartbreakingly difficult to answer.
Violet suffers from the genetic condition spinal muscular atrophy. And while a new drug which could stop its progression is now available, it is out of reach because it costs $125,000 a dose.
