27 May 2019 - Pharmac is playing a "money game" while patients are dying, an advocate for a patient group says, and she's now looking to take the agency to the Human Rights Commission.

Fiona Tolich told First Up she believed Pharmac's delay in funding certain medications was a crime against humanity and she is calling on other patient groups for support.

Stella Beswick, 14, was a mermaid in a past life. That's what her Dad Hayden says.

At 15 months she was diagnosed with spinal muscular atrophy, or SMA type 2, a motor neurone disease that affects children.

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