Posted by Michael Wonder on 15 Nov 2017
Willoughby mum continues push for breakthrough treatment for muscle wasting disease
15 November 2017 - North Willoughby’s Seona Donald’s campaign to make lifesaving treatment an affordable option for spinal muscular atrophy sufferers like her daughter is one step closer to becoming a reality.
The mother of 16-month-old Matilda, who suffers from the most severe form of spinal muscular atrophy, type one, has campaigned to have the only form of treatment, nusinersen, be made available nationwide and now she wants the drug listed as an affordable option for families.
Ms Donald has called for it to be listed on the Pharmaceutical Benefits Scheme — providing affordable access to vital medicines nationwide — after it was approved on November 3 by the Therapeutic Goods Administration to be made commercially available in Australia.
