Blog
RSS FeedPosted by Michael Wonder on 29 Feb 2024
Collaborating to help improve access to drugs for rare diseases
29 February 2024 - On Rare Disease Day — a day when the international community raises awareness about rare conditions ...
Posted by Michael Wonder on 23 Mar 2023
Investments to support access to drugs for rare diseases
22 March 2023 - Today, the Government announced a total investment of up to $1.5 billion over three years in ...
Posted by Michael Wonder on 23 Mar 2023
Government of Canada improves access to affordable and effective drugs for rare diseases
22 March 2023 - Today, the Honourable Jean-Yves Duclos, Minister of Health, announced measures in support of the first-ever National Strategy ...
Posted by Michael Wonder on 21 Apr 2022
Ontario family forced to fight for life-saving drug highlights need for national rare disease strategy
21 April 2022 - Beth Vanstone doesn’t want anyone else to have to fight for access to life saving medications. ...
Posted by Michael Wonder on 27 Nov 2021
It’s time to better support the three million Canadians with a rare disease
25 November 2021 - After finding out her private health insurer would no longer pay for a drug helping with ...
Posted by Michael Wonder on 23 Jun 2021
Rare disease patient advocates continue battle for affordable drugs
23 June 2021 - Beth Vanstone, mother of local Cystic Fibrosis Warrior Madi Vanstone and director of the CF Get ...
Posted by Michael Wonder on 12 Aug 2020
Rare disease drugs strategy, standard coverage in CLHIA’s 2020 budget wish list
12 August 2020 - The Canadian Life and Health Insurance Association is recommending the federal government develop a strategy for ...
Posted by Michael Wonder on 20 Jun 2020
This drug can treat 90 per cent of cystic fibrosis patients, but it's not available in Canada
19 June 2020 - Struggling to breathe is one of the main symptoms of the novel coronavirus that has recently ...
Posted by Michael Wonder on 11 Mar 2020
Patients in the 'Fight for Our Lives' call on Parliament to STOP the PMPRB!
10 March 2020 - As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases are ...
Posted by Michael Wonder on 13 Aug 2019
Canadian drug price regulator may be flexible on rare diseases
14 August 2019 - Canada’s patented drug price regulator, set to gain new powers next year, may be “more forgiving” in ...
Posted by Michael Wonder on 28 Aug 2018
Ottawa’s drug-pricing changes threaten Canadians who suffer from rare diseases
28 August 2018 - The federal government’s plan to increasingly regulate the costs of pharmaceuticals could mean Canadians with cystic ...
Posted by Michael Wonder on 07 Jun 2018
Canada trails US in patient access to rare disease therapies, CORD President says
6 June 2018 - Canada’s healthcare system is excellent for people with common ailments like diabetes or high blood pressure, ...
Posted by Michael Wonder on 13 Mar 2018
Price and clinical factors impact Canadian orphan drug recommendation rates
11 March 2018 - Canada’s Common Drug Review (CDR), which provides recommendations on public payer reimbursement for all non-oncology drugs, ...
Posted by Michael Wonder on 06 Mar 2018
Access to new drugs for rare disorders in Canada
2 March 2018 - McMillan and Campbell believe that Canada needs a regulatory framework for the introduction of orphan drugs ...
Posted by Michael Wonder on 12 Apr 2017
Patented Medicine Prices Review Board will hear closing arguments in the matter of the price of Soliris
12 April 2017 - Closing arguments in the matter of the price of the patented medicine Soliris will be heard from ...