Blog
RSS FeedPosted by Michael Wonder on 25 Mar 2025
Government of Canada signs bilateral agreement with Quebec for Drugs for Rare Diseases
21 March 2025 - In Canada, one in 12 people live with a rare disease, and for most people affected, the ...
Posted by Michael Wonder on 03 Mar 2025
Canada’s Drug Agency publishes new guidance for rare disease registries in Canada
28 February 2025 - On Rare Disease Day — a global event dedicated to raising awareness for the millions of ...
Posted by Michael Wonder on 28 Jan 2025
Drugs for rare diseases – Ontario agreement
24 January 2025 - Today, the Governments of Canada and the province of Ontario signed the National Strategy for Drugs ...
Posted by Michael Wonder on 06 Dec 2024
Government of Canada signs bilateral agreement with Alberta to improve access to drugs for rare diseases
5 December 2024 - Today, the Honourable Mark Holland, Canada's Minister of Health, and the Honourable Adriana LaGrange, Alberta's Minister ...
Posted by Michael Wonder on 24 Oct 2024
Canada’s Drug Agency announces recipients of funding to enhance rare disease registries
21 October 2024 - Canada’s Drug Agency is pleased to announce the successful applicants from our 2024 Request for Proposals (RFP) ...
Posted by Michael Wonder on 29 Feb 2024
Collaborating to help improve access to drugs for rare diseases
29 February 2024 - On Rare Disease Day — a day when the international community raises awareness about rare conditions ...
Posted by Michael Wonder on 23 Mar 2023
Investments to support access to drugs for rare diseases
22 March 2023 - Today, the Government announced a total investment of up to $1.5 billion over three years in ...
Posted by Michael Wonder on 23 Mar 2023
Government of Canada improves access to affordable and effective drugs for rare diseases
22 March 2023 - Today, the Honourable Jean-Yves Duclos, Minister of Health, announced measures in support of the first-ever National Strategy ...
Posted by Michael Wonder on 21 Apr 2022
Ontario family forced to fight for life-saving drug highlights need for national rare disease strategy
21 April 2022 - Beth Vanstone doesn’t want anyone else to have to fight for access to life saving medications. ...
Posted by Michael Wonder on 27 Nov 2021
It’s time to better support the three million Canadians with a rare disease
25 November 2021 - After finding out her private health insurer would no longer pay for a drug helping with ...
Posted by Michael Wonder on 23 Jun 2021
Rare disease patient advocates continue battle for affordable drugs
23 June 2021 - Beth Vanstone, mother of local Cystic Fibrosis Warrior Madi Vanstone and director of the CF Get ...
Posted by Michael Wonder on 12 Aug 2020
Rare disease drugs strategy, standard coverage in CLHIA’s 2020 budget wish list
12 August 2020 - The Canadian Life and Health Insurance Association is recommending the federal government develop a strategy for ...
Posted by Michael Wonder on 20 Jun 2020
This drug can treat 90 per cent of cystic fibrosis patients, but it's not available in Canada
19 June 2020 - Struggling to breathe is one of the main symptoms of the novel coronavirus that has recently ...
Posted by Michael Wonder on 11 Mar 2020
Patients in the 'Fight for Our Lives' call on Parliament to STOP the PMPRB!
10 March 2020 - As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases are ...
Posted by Michael Wonder on 13 Aug 2019
Canadian drug price regulator may be flexible on rare diseases
14 August 2019 - Canada’s patented drug price regulator, set to gain new powers next year, may be “more forgiving” in ...