Blog
RSS FeedPosted by Michael Wonder on 06 Dec 2024
Jessica Lawrence’s meds cost her family $75k a year because they’re not listed on the PBS
6 November 2024 - Medications that are subsidised for cancer sufferers are critical to Jess Lawrence’s wellbeing, but because the 25-year-old ...
Posted by Michael Wonder on 11 Apr 2023
New life saving medicines
11 April 2023 - The Australian Government has added the two medicines, Kanuma (sebelipase alfa) and Cerdelga (eliglustat) to the Life ...
Posted by Michael Wonder on 09 Sep 2022
Rare cancer sufferers fight to get drugs on PBS
9 September 2022 - People with rare cancers are being forced to sell their homes, raid their superannuation and fundraise ...
Posted by Michael Wonder on 04 Sep 2022
Australia among world's best in treating debilitating and often fatal muscle disorder
4 September - Australia has become one of the first countries in the world to fund a new, next-generation treatment ...
Posted by Michael Wonder on 10 Nov 2020
Mirum Pharmaceuticals broadens Expanded Access Program for maralixibat in Alagille syndrome to Europe and Australia
5 November 2020 - Maralixibat Expanded Access Program now available for patients with pruritus associated with Alagille syndrome in Australia and ...
Posted by Michael Wonder on 27 Feb 2020
Cystic fibrosis is the reason for denial of Irish man's re-entry visa by Australian Government, family says
26 February 2020 - A young Irish man with cystic fibrosis who calls Western Australia home has been denied entry ...
Posted by Michael Wonder on 27 Feb 2020
First National Action Plan for rare diseases
26 February 2020 - The Australian Government will provide up to $3.3 million for activities to implement the first National Strategic ...
Posted by Michael Wonder on 17 Jul 2019
Perth boy battles cystic fibrosis, with a life extending drug frustratingly out of reach
15 July 2019 - In many ways Connor Barrett is just like any other kid - he loves Peppa Pig ...
Posted by Michael Wonder on 16 Jul 2019
Irish cystic fibrosis family face €12,400 bill after deportation victory in Australia
15 July 2019 - An Irish family threatened with deportation from Australia because their son has cystic fibrosis have been ...
Posted by Michael Wonder on 11 Apr 2019
Family faces deportation from Australia after son diagnosed with cystic fibrosis
10 April 2019 - Anthony and Christine Hyde's application for permanent residence in Australia has been rejected - because of their ...
Posted by Michael Wonder on 01 Nov 2018
Migalastat (Galafold) included on the Life Saving Drugs Program
1 November 2018 - Galafold is an oral treatment that has been included on the Life Saving Drugs Program to treat ...
Posted by Michael Wonder on 31 Oct 2018
Medicine for rare disease made free on the Life Saving Drugs Program
1 November 2018 - The Australian Government has made a new medicine available for free for an extremely rare and potentially ...
Posted by Michael Wonder on 31 Oct 2018
Patients with rare disease get free access to life-saving wonder drug
1 November 2018 - Australians with a rare genetic condition, that can kill sufferers in the most severe cases by ...
Posted by Michael Wonder on 13 Oct 2018
Mum's battle for life-saving drug
12 October 2018 - At just 29 years of age, doting mother Kate McKenzie has faced more battles than anyone ...
Posted by Michael Wonder on 12 Sep 2018
Battle for wonder drug pays off
13 September 2018 - A West Pymble mother feels the “weight of the world” has been lifted following the federal ...