‘An absolute game changer’: children under 12 to receive life saving drug

6 April 2023 - Hundreds of children with cystic fibrosis will have subsidised access to the life-changing medication Trikafta from ...

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NICE recommends life-changing gene therapy for children with ultra rare genetic disorder in final draft guidance

23 March 2023 - The first and currently only gene therapy for children with an ultra-rare genetic disorder has been recommended ...

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Alberta’s import of children’s medication to cost taxpayers $80 million

9 March 2023 - Alberta taxpayers are on the hook for $80 million, after Health Minister Jason Copping finally revealed ...

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PHARMAC will fund meningococcal B vaccine for babies, teens and young people

28 February 2023 - From Wendesday, PHARMAC will fund meningococcal B vaccine for a number of potentially at-risk groups including ...

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UK’s most expensive drug Libmeldy saved Teddi Shaw, but is too late for her sister

16 February 2023 - A toddler with a rare inherited condition has become the first child to be treated by ...

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Digital mental health tech for children and young people recommended by NICE in first rapid healthtech guidance

8 February 2023 - Four digital technologies that can help children and young people with mild to moderate symptoms of anxiety ...

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NICE recommends genetic test to prevent newborn babies going deaf

9 February 2023 - A genetic test to establish if a newborn baby is vulnerable to deafness if treated with a ...

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Changes to HPV vaccine dose schedule for young Australians

6 February 2023 - From 6 February 2023 the human papillomavirus vaccine schedule will become a single dose schedule. ...

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Somatrogon for treating growth disturbance in people 3 years and over

1 February 2023 - Somatrogon is recommended as an option for the treatment of children 3 years of age and over ...

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Mum's push for cystic fibrosis treatment to be subsidised for children under 12

23 January 2023 - Mila was diagnosed with cystic fibrosis aged just one, after experiencing lung failure in hospital, and ...

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NICE recommends a weekly injection for treating growth failure in children

22 December 2022 - This recommendation comes from a pilot to develop simpler, faster evaluations for the appraisal of some treatments. ...

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EQ-5D-Y-3L value sets, valuation methods and conceptual questions

12 December 2022 - The measurement and valuation of child health-related quality of life is a rapidly evolving field. ...

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Children, parents protest PHARMAC funding review at Parliament

14 December 2022 - A petition calling on PHARMAC to "fund lifesaving medicines for all New Zealand children" has been ...

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PHARMAC petition: fear tamariki with cancer won’t have access to lifesaving medicines

13 December 2022 - A petition, that will be delivered tomorrow to Parliament, on behalf of Tamariki with cancer, chronic ...

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'Heartbreaking': parents of sick 11 month old want greater meningitis awareness

19 November 2022 - A cough quickly turned into a “horrible” few weeks for an Auckland family whose infant son ...

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