Alberta family waiting on approval for expensive, life-saving drug for young boy

Globe and Mail

23 March 2021 - Reign Johnston turned 2 on March 5. One of his grandpas and an uncle came to visit. His dad got him a triceratops balloon. They ate ice cream cake and KFC. 

Later, the family took Reign to Toys “R” Us to pick out some play things. It was a good day – a happy day – but made his mom, Alex Johnston, nervous.

“I feel like time is running out,” she said.

Reign has Type 1 spinal muscular atrophy, a rare and frequently fatal disease.

Read Globe and Mail article 

Michael Wonder

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Michael Wonder