Posted by Michael Wonder on 20 May 2020
B.C. teen with rare disease wins fight to receive costly drug from province
19 May 2020 - Health ministry won't explain change of heart in granting Miles Ambridge treatment for spinal muscular atrophy.
Miles Ambridge greeted news he would finally receive a life-changing drug with a couple of fist pumps — the most he could manage from his motorized wheelchair.
Ambridge, 14, has spinal muscular atrophy, a rare neuromuscular disease that's slowly robbing him of strength.
