Posted by Michael Wonder on 10 Mar 2019
Family of sick toddler launches petition urging PHARMAC to fund life-extending drug Spinraza
10 March 2019 - A Pukekohe family has launched a petition urging PHARMAC to fund a drug for spinal muscular atrophy - which they believe would prolong the life of their 2-year-old daughter.
Kristie Yeoman's daughter, Charlotte Bond, was diagnosed with the degenerative illness just before her first birthday.
The family already had an inkling something was wrong in the months before - Kristie and her partner Rick noticed she reached certain milestones like crawling and walking later than expected.
