Posted by Michael Wonder on 10 Jun 2020
Hawke's Bay mum's heartbreak as PHARMAC refuses spinal muscular atrophy drug for her two kids
9 June 2020 - Skylah-Rose Shaw 8 and her brother Zayden Shaw 10 suffer from spinal muscular atrophy a disease that makes the muscles progressively weaker. They want to use a new drug.
Read New Zealand Herald article