Posted by Michael Wonder on 10 Oct 2019
'I'm not ready to bring her back' - NZ not safe for three-year-old with motor neuron disease, mum says
10 October 2019 - Three-year-old New Zealander Charlotte Bond is showing signs she may walk again on her own with the help of a special drug, but she's having to achieve her milestones across the ditch because of barriers set by PHARMAC.
Lifesaving drug Spinraza hasn't been approved for funding in New Zealand, making the country unsafe for her to return home, her mum Kirstie Yeoman told TVNZ1's Breakfast today.
Charlotte and her family have uprooted their lives from Auckland, leaving behind extended family and friends, to start a life in Australia so that she can get access to the treatment for her motor neuron disease spinal muscular atrophy.
