Kiwi mum pleads with PHARMAC to fund life-changing drug Spinraza for her two children

Newshub

11 September 2020 - The mother of two young boys with a rare disease is begging PHARMAC to fund a medication which could change her children's lives.

Lani McLeod's two sons, two year old Lincoln and 11 week-old Harlan, both have spinal muscular atrophy - a neuromuscular disease which can rob a human of their most basic functions such as sitting, standing, and even breathing.

The one drug which could change her children's lives, Spinraza, is unfunded.

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Michael Wonder

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Michael Wonder