Newly approved treatment could save a young child in Edmonton with a rare disease. It costs 2.8 million dollars per dose.

Globe and Mail

19 December 2020 - Reign Johnston is a happy baby who enjoys painting as much as playing with toys. His green eyes light up when his mother plays the clarinet. 

Even when he is in his stroller – a BiPAP machine hooked to his nose, a gastrostomy feeding tube attached in his stomach – he flashes a warm smile at staring passersby.

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Michael Wonder

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Michael Wonder