PHARMAC asked to fund drug for children with spinal muscular atrophy after it changes four year old's life

One News

5 May 2021 - Four year old Charlotte Bond couldn’t roll over by herself two years ago.

She has type 2 spinal muscular atrophy, a genetic condition that affects the control of muscle movement and causes a person’s muscles to waste away.

Her family moved to Australia where Spinraza is funded. Because of it, she can now take about 250 steps a day unassisted.

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Michael Wonder

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Michael Wonder