Posted by Michael Wonder on 14 Apr 2019
Saving Charlotte: Bennett to present Parliament with petition calling for funding of SMA drug
14 April 2019 - A 15,000-strong petition calling on PHARMAC to fund a drug to treat spinal muscular atrophy is being presented to Parliament as the Auckland family behind it watch their daughter's health deteriorate.
National MP Paula Bennett is presenting the petition - written by mother Kristie Yeoman and grandmother Janine Yeoman - on May 1. Bennett met Kristie and her 2-year-old daughter Charlotte Bond, who has SMA, last month.
Bennett met Kristie and her 2-year-old daughter Charlotte Bond, who has SMA, last month.
