Posted by Michael Wonder on 05 Nov 2019
Talking with Tama, a sick toddler who can't access the drug he needs
5 November 2019 - "Hi!" a bright young voice says down the phone.
Tama Hubbard is back to his talkative, happy self – for now.
The 3-year-old Taupō toddler was yesterday having one of his increasingly rare good days. A couple of weeks ago he was in Rotorua Hospital breathing through a machine.
Tama has a degenerative disease called spinal muscular atrophy, which sometimes leaves him so weak he can't lift his head, or lift his hand to his mouth to eat.
