Posted by Michael Wonder on 03 Nov 2019
Tama is deteriorating fast. But the drug that can help him is too expensive.
31 October 2019 - Tama Hubbard has good days and bad days, just like any other 3-year-old child.
But lately, the bad are outnumbering the good. And things aren't looking up.
The Taupō toddler has a degenerative disease called spinal muscular atrophy.
It is thought there are fewer than 100 people in the country with the condition.
