30 January 2020 - Eva was diagnosed with spinal muscular atrophy, a motor neuron disease, just a few weeks after her birth in August. Her parents plan to enter her in a controversial "drug lottery" in the hopes of getting access for a promising new treatment that costs $2.1m (£1.6m) per patient.

Ricardo and Jessica Batista noticed something was wrong with Eva just a couple of weeks after she was born.

The Toronto couple's "beautiful young girl" loved to play and smile but took a long time to eat. She would get tired. Her arms would fall back when they picked her up.

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