Posted by Michael Wonder on 01 Nov 2019
'Why won’t they help him?': 'Broken' mother pleads for PHARMAC funding for toddler's rare disorder
1 November 2019 - The mother of a young boy is pleading with PHARMAC to fund a drug that could stop her son's suffering.
Three-year-old Tama has a degenerative disease called spinal muscular atrophy, and though a drug that treats it - called Spinraza - is available overseas, it is not funded in New Zealand.
Tama's mother, Lisa Geddes says she is "just broken" knowing that help for her son is out there but that she can't access it.
