Blog
RSS FeedPosted by Michael Wonder on 06 May 2018
Cystic fibrosis drug Orkambi in PBS decision: Moree family share story
5 May 2018 - A Moree couple have added their voices to cries for a life-changing and life-giving drug to ...
Posted by Michael Wonder on 03 May 2018
March sends CF message to minister
3 May 2018 - Bunbury mother of three Taryn Barrett says the Cystic Fibrosis Australia march in Sydney has sent ...
Posted by Michael Wonder on 01 May 2018
Crowd inundates Sunrise set holding red balloons and ‘Orkambi’ signs
1 May 2018 - A huge crowd stormed the Sunrise broadcast this morning, wearing surgical masks and holding signs with a ...
Posted by Michael Wonder on 30 Apr 2018
Hunter cystic fibrosis patients rally for access to “wonder drug” Orkambi
30 April 2018 - Verity Chappell was “shattered” when she had to puncture daughter Tylah’s 15th birthday with news the ...
Posted by Michael Wonder on 04 Mar 2018
Spinraza, a life-saving drug for spinal muscular atrophy remains out of reach
5 March 2018 - Naomi Taylor and Ben McLennan watch their son William deteriorate every day. ...
Posted by Michael Wonder on 29 Jan 2018
Rare disease medicine changes offer clarity
29 January 2018 - Proposed changes to the provision of medicines for rare diseases should bring greater certainty for people ...
Posted by Michael Wonder on 29 Jan 2018
Medicines Australia welcomes LSDP review outcomes
28 January 2018 - Medicines Australia welcomes the Government’s announcement of an outcome from the post-market review of the Life ...
Posted by Michael Wonder on 28 Jan 2018
Review of the Life Saving Drugs Program - final report and Government response
28 January 2018 - After nearly 4 years and 3 health ministers, the final report and Government's response to the ...
Posted by Michael Wonder on 10 Dec 2017
Rare cancer treatment a success for Jie Eccles
9 December 2017 - Six months ago Jie wrote an open letter to the readers of news.com.au asking them to help ...
Posted by Michael Wonder on 05 Dec 2017
The Webster family spent their life savings to save their son Matthew after rare cancer diagnosis
3 December 2017 - When David and Jennifer Webster’s son Matthew was diagnosed with a rare cancer, they didn’t think ...
Posted by Michael Wonder on 05 Dec 2017
Adelaide mum makes plea for cystic fibrosis drug to be added to PBS
5 December 2017 - At 30 years old, Adelaide mother-of-two Emmah Evans may have just seven years left to live. ...
Posted by Michael Wonder on 21 Nov 2017
Mum fights to get drug on PBS
21 November 2017 - A Bunbury mother of three has been recognised for her work in raising awareness of cystic ...
Posted by Michael Wonder on 05 Nov 2017
New hope for families affected by spinal muscular atrophy, with TGA approving drug
4 November 2017 - A drug that can extend the life of children and adults with spinal muscular atrophy (SMA) ...
Posted by Michael Wonder on 09 Aug 2017
New report proposes radical reforms for rare cancer regulation
9 August 2017 - The first Lauren Poole had heard of epithelioid sarcoma was the day she was told her ...
Posted by Michael Wonder on 28 Jun 2017
Wagga teen hoping for access to "life-changing" cystic fibrosis medication
28 June 2017 - A Wagga family is hoping a third attempt to have a cystic fibrosis drug subsidised will ...