Blog
RSS FeedPosted by Michael Wonder on 01 Aug 2021
Family says choice is life in Australia or death waiting for PHARMAC
2 August 2021 - A Tauranga couple is splitting up their family so their daughter can access treatment for spinal muscular ...
Posted by Michael Wonder on 19 Jul 2021
PHARMAC ensuring supply of prednisolone to treat children with respiratory conditions
19 July 2021 - PHARMAC is working hard to ensure on-going supply of an important medicine used to treat respiratory conditions ...
Posted by Michael Wonder on 14 Jul 2021
PHARMAC has for decades refused to fund Synagis drug that could save vulnerable babies from RSV
14 July 2021 - Newshub can reveal after two decades of refusing to fund a drug that could halve the ...
Posted by Michael Wonder on 03 Jun 2021
'We're not just all about the money' — PHARMAC defends why it still won't fund drug for rare children's disorder
3 June 2021 - Under-fire PHARMAC is defending the way it funds New Zealand's drugs, with the agency's director of operations, ...
Posted by Michael Wonder on 26 May 2021
Colchester baby's parents feel 'abandoned' over £1.7 million drug
25 May 2021 - A baby with a fatal genetic condition has been "abandoned" in a "race against time" for ...
Posted by Michael Wonder on 25 May 2021
Jacinda Ardern listening to calls for PHARMAC to fund 13 year old's life-changing drugs, but nothing she can do
25 May 2021 - Prime Minister Jacinda Ardern says she's listening to calls for life-changing drugs to be made more ...
Posted by Michael Wonder on 05 May 2021
'Intimidating' PHARMAC move may lead to child cancer drug delays
6 May 2021 - Two of New Zealand's leading cancer experts have slammed PHARMAC's proposal to take away the special exemption ...
Posted by Michael Wonder on 05 May 2021
PHARMAC asked to fund drug for children with spinal muscular atrophy after it changes four year old's life
5 May 2021 - Four year old Charlotte Bond couldn’t roll over by herself two years ago. ...
Posted by Michael Wonder on 04 May 2021
Andrew Little not pleased with Children's Commissioner comments on potential PHARMAC move
4 May 2021 - Heath Minister Andrew Little says he expects better of the Children's Commissioner after he described a potential ...
Posted by Michael Wonder on 03 May 2021
Children's Commissioner worried PHARMAC will cut children's access to cancer drugs
4 May 2021 - Children's Commissioner Andrew Becroft is warning PHARMAC not to play one group of children with a ...
Posted by Michael Wonder on 03 May 2021
PHARMAC likely to end blanket funding for kids’ cancer drugs
3 May 2021 - A woman trying to get drugs funded for young spinal muscular atrophy patients was horrified when PHARMAC ...
Posted by Michael Wonder on 03 Apr 2021
Spinal muscular atrophy: push to get $3.5 million drug approved to save babies’ lives
4 April 2021 - Parents whose children have died or suffer from spinal muscular atrophy are fighting to make breakthrough gene ...
Posted by Michael Wonder on 30 Mar 2021
Phenylketonuria sufferer has new hope for wonder drug after Government responds to plea
30 March 2021 - A teenager desperate to get a life-changing drug has been thrown a glimmer of hope by ministers. ...
Posted by Michael Wonder on 29 Mar 2021
Alberta family waiting on approval for expensive, life-saving drug for young boy
23 March 2021 - Reign Johnston turned 2 on March 5. One of his grandpas and an uncle came to ...
Posted by Michael Wonder on 25 Feb 2021
NICE draft guidance recommends sapropterin for children with rare inherited metabolic condition phenylketonuria
25 February 2021 - NICE has today issued draft guidance for public consultation which recommends sapropterin (Kuvan, BioMarin) for treating phenylketonuria ...