Blog
RSS FeedPosted by Michael Wonder on 13 Oct 2018
Mum's battle for life-saving drug
12 October 2018 - At just 29 years of age, doting mother Kate McKenzie has faced more battles than anyone ...
Posted by Michael Wonder on 10 Oct 2018
XLH patients to get routine access to first new therapy in 30 years
10 October 2018 - For the first time in more than 30 years children and young adults in England and ...
Posted by Michael Wonder on 08 Oct 2018
Revised process for ultra-orphan medicines
8 October 2018 - Following the Scottish Government's announcement around a new pathway in June 2018, a new approach to the ...
Posted by Michael Wonder on 12 Sep 2018
Battle for wonder drug pays off
13 September 2018 - A West Pymble mother feels the “weight of the world” has been lifted following the federal ...
Posted by Michael Wonder on 04 Sep 2018
Vertex announces reimbursement agreement in Australia for Orkambi (lumacaftor/ivacaftor) for people with cystic fibrosis ages six years and older with two copies of the F508del mutation
3 September 2018 - Approximately 1,300 patients in Australia join the thousands of patients worldwide who already have access to lumacaftor/ivacaftor. ...
Posted by Michael Wonder on 02 Sep 2018
Eligible cystic fibrosis patients get free access to life-changing drug
2 September 2018 - More than 1200 Australians battling the incurable lung disease cystic fibrosis will be given immediate, free ...
Posted by Michael Wonder on 31 Aug 2018
Medicines Australia welcomes announcement LSDP Expert Panel
31 August 2018 - Medicines Australia welcomes today’s announcement by Minister for Health, the Hon Greg Hunt MP on the ...
Posted by Michael Wonder on 28 Aug 2018
Ottawa’s drug-pricing changes threaten Canadians who suffer from rare diseases
28 August 2018 - The federal government’s plan to increasingly regulate the costs of pharmaceuticals could mean Canadians with cystic ...
Posted by Michael Wonder on 23 Aug 2018
Sobi secures NHS reimbursement for Ravicti
23 August 2018 - Rare disease group Swedish Orphan Biovitrum (Sobi) says it has gained NHS England reimbursement for Ravicti ...
Posted by Michael Wonder on 22 Aug 2018
Cystic fibrosis drug to be listed on PBS
22 August 2018 - A medication for cystic fibrosis will soon be subsidised by the federal government, Health Minister Greg ...
Posted by Michael Wonder on 20 Aug 2018
PBAC recommendation moves approximately 1,300 patients in Australia closer to access to lumacaftor/ivacaftor and Vertex is now working with the Australian Government to finalize a reimbursement agreement as soon as possible
20 August 2018 - Vertex Pharmaceuticals announces that it has received the PBAC recommendation for Orkambi (lumacaftor/ivacaftor) to be listed on ...
Posted by Michael Wonder on 18 Aug 2018
Pharmaceutical Benefits Advisory Committee recommends Orkambi for PBS
17 August 2018 - Cystic fibrosis sufferers across Australia will now have access to a life-changing drug after the Federal ...
Posted by Michael Wonder on 15 Aug 2018
'You have the medicine that can make me feel much better': boy, 8, pens letter asking drug company to lower prices
14 August 2018 - Watch eight-year-old Luis Walker, who has cystic fibrosis, read his letter to a pharmaceutical company urging ...
Posted by Michael Wonder on 14 Aug 2018
Call for Pharmaceutical Benefits Scheme to include subsidies for more rare cancer treatments
14 August 2018 - Oncologists say thousands of cancer patients are either missing out on medication or being forced to ...
Posted by Michael Wonder on 16 Jul 2018
PHARMAC work in funding medicines for rare disorders progressing
16 July 2018 - PHARMAC is progressing work aimed at improving funded access to medicines for rare disorders. ...