Blog
RSS FeedPosted by Michael Wonder on 18 Jul 2020
'Heartbreaking': Alberta families describe waiting for life-changing drug to be made available in Canada
17 July 2020 - More families are hoping a one-time treatment option for a rare condition will be made available ...
Posted by Michael Wonder on 06 Jul 2020
Canadians demand access to ‘miracle’ cystic fibrosis drug already approved in U.S. and U.K
6 July 2020 - Montreal’s Chelsea Gagnon may look like a healthy 31-year-old woman at first glance, but every single ...
Posted by Michael Wonder on 05 Jul 2020
Clock ticking on Edmonton family's hope for $2.8 million drug treatment for toddler son
3 July 2020 - Family hoping Alberta Health will pay for new drug that must be administered by mid-July. ...
Posted by Michael Wonder on 20 Jun 2020
This drug can treat 90 per cent of cystic fibrosis patients, but it's not available in Canada
19 June 2020 - Struggling to breathe is one of the main symptoms of the novel coronavirus that has recently ...
Posted by Michael Wonder on 18 Jun 2020
Vertex and Canada hold talks over cystic fibrosis drug, but a deal for newer medicine remains out of reach
18 June 2020 - The icy relationship between Vertex Pharmaceuticals and the Canadian government is showing signs of thawing a ...
Posted by Michael Wonder on 02 Jun 2020
Local mother, daughter 'getting loud' for cystic fibrosis and the need for lifesaving medication
31 May 2020 - Beth and Madi Vanstone have been working tirelessly to help other cystic fibrosis patients and other Canadians ...
Posted by Michael Wonder on 20 May 2020
B.C. teen with rare disease wins fight to receive costly drug from province
19 May 2020 - Health ministry won't explain change of heart in granting Miles Ambridge treatment for spinal muscular atrophy. ...
Posted by Michael Wonder on 23 Apr 2020
Vertex offers free cystic fibrosis medicines if Canada will negotiate
23 April 2020 - A maker of life saving drugs has responded to an attractiveness from the Canadian Cystic Fibrosis ...
Posted by Michael Wonder on 02 Apr 2020
Canadian lupus patients missing critical drug after claims it treats coronavirus
1 April 2020 - It had been 90 days since Vinita Haroun last refilled her prescription of hydroxychloroquine, so it ...
Posted by Michael Wonder on 24 Mar 2020
Edaravone for amyotrophic lateral sclerosis: barriers to access and lifeboat ethics
23 March 2020 - Despite its unavailability in Canada, patients legally imported the drug under provisions of the Canadian Food and ...
Posted by Michael Wonder on 19 Mar 2020
Low prices won't keep new medicines out of Canada
19 March 2020 - There is no evidence of a link between pricing, research and development, and access to medicine. ...
Posted by Michael Wonder on 12 Mar 2020
CF Canada pleads with Ottawa to pave way for access to life-saving drugs
11 March 2020 - The national organisation that represents people who have cystic fibrosis is calling for changes to stop ...
Posted by Michael Wonder on 12 Mar 2020
AbbVie announces new formulary listings for Skyrizi in the treatment of moderate to severe plaque psoriasis
12 March 2020 - Non-Insured Health Benefits program lists Skyrizi on its formulary effective 21 February 2020. ...
Posted by Michael Wonder on 11 Mar 2020
Patients in the 'Fight for Our Lives' call on Parliament to STOP the PMPRB!
10 March 2020 - As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases are ...
Posted by Michael Wonder on 08 Mar 2020
Price controls imposed by shortsighted politicians keep new life-saving drugs out
5 March 2020 - Politicians need to step outside the Ottawa bubble and understand how their policies impact the lives of ...