Blog
RSS FeedPosted by Michael Wonder on 13 May 2024
PHARMAC shares the agenda items for the upcoming Rare Disorders Committee meeting (May 2024)
13 May 2024 - PHARMAC is sharing what medicine applications will be considered at the Rare Disorders Advisory Committee meeting ...
Posted by Michael Wonder on 29 Feb 2024
Today is Rare Disease Day
29 February 2024 - PHARMAC understands that people living with rare disorders face many challenges, including access to health care ...
Posted by Michael Wonder on 13 Nov 2023
PHARMAC calls for applications for medicines for rare disorders
13 November 2023 - PHARMAC is calling for applications for medicines to treat rare disorders. ...
Posted by Michael Wonder on 10 Aug 2023
PHARMAC’s Rare Disorders Advisory Committee makes new recommendations for funding
10 August 2023 - PHARMAC has published the record of the March Rare Disorders Advisory Committee meeting, sharing details on ...
Posted by Michael Wonder on 05 Mar 2023
Our progress in the funding of medicines for rare disorders
3 March 2023 - PHARMAC will hear from people affected by rare disorders in its upcoming Rare Disorders Advisory Committee meeting ...
Posted by Michael Wonder on 06 Nov 2022
Kiwis with rare disorders want faster progress on 'life or death' health strategy
6 November 2022 - For Samantha Lenik, being diagnosed with Pompe disease after seven years of symptoms was a “double-edged ...
Posted by Michael Wonder on 01 Jun 2022
Cancer, rare disorder advocates call for more radical change after damning PHARMAC review
2 June 2022 - Radical action is needed urgently to tackle the delays patients face in getting the latest drugs for ...
Posted by Michael Wonder on 31 Mar 2022
Statement from Rare Disorders NZ re Minister Little's comments on PHARMAC funding
31 March 2022 - Rare Disorders NZ is extremely frustrated to hear the Minister of Health this week dismiss the call ...
Posted by Michael Wonder on 14 Jul 2021
PHARMAC 'cruel' for failing to fund drugs for rare illnesses — advocate
14 July 2021 - New Zealand’s drug-buying agency doesn’t value the lives of all people equally, according to those advocating for ...
Posted by Michael Wonder on 11 Apr 2021
Masterton woman feels abandoned after medical funding rejected
9 April 2021 - Masterton's Allyson Lock feels she is not part of the "team of five million" after her ...
Posted by Michael Wonder on 11 Jan 2021
Evaluating New Zealanders’ values for drug coverage decision-making: trade-offs between treatments for rare and common conditions
8 January 2021 - The objectives of this study were to measure the relative societal importance of values of New Zealanders ...
Posted by Michael Wonder on 11 May 2020
PHARMAC funding increase "extremely disappointing"
11 May 2020 - Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding ...
Posted by Michael Wonder on 23 Apr 2020
Recent PHARMAC funding decisions
22 April 2020 - You may have read about PHARMAC’S decision this week to scrap a lung cancer drug funding ...
Posted by Michael Wonder on 25 Feb 2020
Everyone wants to help, but still the red tape prevents Dylan Barker getting medicine
25 February 2020 - Dylan Barker lives with a rare genetic condition turning muscles, tendons and ligaments to bone, locking ...
Posted by Michael Wonder on 21 Jan 2020
Mum says 'miracle' drug saved ill baby Kaan Hunter's life
21 January 2020 - A baby who was given only four months to live after being diagnosed with an extremely ...