Blog
RSS FeedPosted by Michael Wonder on 30 Jan 2022
How are child specific utility instruments used in decision making in Australia? A review of Pharmaceutical Benefits Advisory Committee public summary documents.
28 January 2022 - Measuring and valuing health-related quality of life in children can be challenging but is an important component ...
Posted by Michael Wonder on 27 Oct 2021
Audrey Ashman’s bone treatment for rare genetic disease known as XLH denied government subsidy
24 October 2021 - Audrey Ashman loves to ballet dance and plays with her brothers — but she needs a special ...
Posted by Michael Wonder on 03 Apr 2021
Spinal muscular atrophy: push to get $3.5 million drug approved to save babies’ lives
4 April 2021 - Parents whose children have died or suffer from spinal muscular atrophy are fighting to make breakthrough gene ...
Posted by Michael Wonder on 15 Nov 2020
Life-saving spinal muscular atrophy medicine to be made available to Australian babies
15 November 2020 - Access to a life-saving and life-changing medicine will soon be expanded for Australian children and infants with ...
Posted by Michael Wonder on 17 Sep 2020
'Burning liquid fire': sick Aussies endure agonising injections while painless drug is available overseas
17 September 2020 - Every fortnight, 10-year-old Ciera Ayer is forced to endure hours of agony when she is injected ...
Posted by Michael Wonder on 11 Sep 2020
NSW boy with severe eczema says he’s ‘tired’ of living with illness as family ask for drug to be subsidised
11 September 2020 - The family of a young NSW boy suffering from a severe skin condition will have to fork ...
Posted by Michael Wonder on 19 Dec 2019
'Healthy lottery' fears as Novartis plans to give away world’s most expensive drug
19 December 2019 - Novartis aims to give away 100 doses of its $US2.1 million-per-patient ($3.05 million) Zolgensma for spinal ...
Posted by Michael Wonder on 21 Oct 2019
Cystic fibrosis medicines listings on the Pharmaceutical Benefits Scheme
21 October 2019 - Minister Hunt talks at the Great Strides Fun Run about the listing of 2 new medicines, ...
Posted by Michael Wonder on 20 Oct 2019
Vertex announces reimbursement of cystic fibrosis medicines Symdeko (tezacaftor/ivacaftor and ivacaftor) for eligible patients ages 12 and older, and Orkambi (lumacaftor/ivacaftor) in children ages 2 to 5, with certain CFTR mutations in Australia
19 October 2019 - Vertex Pharmaceuticals today announced that Symdeko (tezacaftor/ivacaftor and ivacaftor) is reimbursed in Australia for people with cystic ...
Posted by Michael Wonder on 09 Oct 2019
Prescription opioid dispensing in Australian children and adolescents: a national population-based study
8 October 2019 - There are few population-based studies of paediatric opioid use. ...
Posted by Michael Wonder on 28 Aug 2019
Free flu jabs for kids on NIP move is welcomed by state Health minister Steven Miles
28 August 2019 - Australian children aged six months to five will be given free flu vaccines in 2020 if Health ...
Posted by Michael Wonder on 27 Aug 2019
Family’s joy at access to drug for son
27 August 2019 - A Bunbury mother says she has more hope for her son’s future following a recommendation to ...
Posted by Michael Wonder on 23 Aug 2019
‘Life saving’ news for Gold Coast family after little Beau allowed to take drug Orkambi to slow cystic fibrosis diagnosis
23 August 2019 - When this Gold Coast girl blew out candles for her 10th birthday yesterday, she did not wish ...
Posted by Michael Wonder on 04 Aug 2019
‘A life is more important than money’: grieving parents’ plea for funded vaccination
4 August 2019 - Little Donald Peach was fully vaccinated — or so his parents thought after following the government’s official ...
Posted by Michael Wonder on 01 Aug 2019
Baby's brain tumour highlights 'nightmare' experience with private health insurance
1 August 2019 - Kylie Catterick's son Josh was just four-and-a-half months old when she realised something was wrong and ...