Blog
RSS FeedPosted by Michael Wonder on 15 Jun 2017
This little boy can finally be a 'typical boy' thanks to this drug
15 June 2017 - Six-year-old Beau has a rare degenerative condition, Morquio A syndrome. ...
Posted by Michael Wonder on 15 Jun 2017
Providing $400,000 life-saving drug to Australian kids with rare disease
15 June 2017 - The Australian Government will provide a life-saving treatment to Australian patients who have a rare medical condition ...
Posted by Michael Wonder on 14 Jun 2017
Turnbull government’s $44 million plan to give sick kiddies free meds
14 June 2017 - Some of Australia’s sickest kids suffering a rare medical condition known as Morquio A Syndrome will ...
Posted by Michael Wonder on 11 Jun 2017
'The wrong cancer': Pharmaceutical Benefits Scheme failing rare cancer sufferers
11 June 2017 - In some ways, Sarah McGoram and her husband Tom have been incredibly lucky in life. ...
Posted by Michael Wonder on 04 Jun 2017
Canberra girl with cystic fibrosis lobbies the Federal Government to give all access to the drug Orkambi
2 June 2017 - Twelve-year-old Canberra girl Bella Mitchell is more than aware how lucky she is to be on ...
Posted by Michael Wonder on 01 May 2017
Cystic fibrosis 'miracle' drug among Turnbull government's $310 million PBS listing
1 May 2017 - A cystic fibrosis "miracle" drug that would normally cost patients $300,000 a year and a breakthrough ...
Posted by Michael Wonder on 03 Apr 2017
Stan Zemanek’s widow Marcella calls for more funding into rare cancers
2 April 2017 - The widow of radio broadcaster Stan Zemanek has made an emotional plea to the federal government ...
Posted by Michael Wonder on 26 Mar 2017
Rare cancer drug added to PBS
25 March 2017 - A drug used to treat a rare form of cancer now widely available through the national ...
Posted by Michael Wonder on 17 Mar 2017
Cystic fibrosis advocates push for affordable access to Orkambi only drug available in Australia
17 March 2017 - Cystic fibrosis patients should be given immediate and free access to the only drug available in ...
Posted by Michael Wonder on 12 Mar 2017
The tragedy of Aviana
12 March 2017 - It’s the stuff of every parent’s nightmare: a rare genetic disorder means Bethan and Johnny’s perfect baby ...
Posted by Michael Wonder on 10 Mar 2017
Patients with rare cancers fight for more research, funding, support
9 March 2017 - As a teenager, Kelly Cartwright dreamed of playing netball for Australia, but a niggling pain in ...
Posted by Michael Wonder on 07 Feb 2017
Aussie kids given immediate access to life-changing cystic fibrosis drug
7 February 2017 - From 7 February, children aged two to five will have immediate and free access to Kalydeco (ivacaftor) ...
Posted by Michael Wonder on 06 Feb 2017
Cystic fibrosis sufferers to get lifesaving medication for free after government intervention
6 February 2017 - A life changing drug — previously unaffordable for Australia’s littlest cystic fibrosis sufferers costing $300,000 a ...
Posted by Michael Wonder on 05 Feb 2017
Riverina mother to tackle government over PBS' refusal to list cystic fibrosis drug
5 February 2017 - A government decision to keep a revolutionary drug out of the hands of desperate parents has ...
Posted by Michael Wonder on 04 Feb 2017
Drug game-changer for thousands suffering from cystic fibrosis headed for the PBS
5 February 2017 - Australia's youngest cystic fibrosis sufferers will this week get a massive reprieve when the government lists ...