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RSS FeedPosted by Michael Wonder on 17 Sep 2019
News NHS England explores funding options for cystic fibrosis drug
17 September 2019 - NHS England is “committed to exploring and developing alternative routes” to enable people with cystic fibrosis ...
Posted by Michael Wonder on 08 Jul 2019
Cystic fibrosis scandal: Drugs boss tells boy, 9, he wants NHS deal to save lives
8 July 2019 - The millionaire boss of a US drugs firm has penned a personal letter to a boy with ...
Posted by Michael Wonder on 18 Jun 2019
Buyers’ Club wants government support on Orkambi imports
17 June 2019 - Proposes three point plan to work round impasse. ...
Posted by Michael Wonder on 15 Jun 2019
Theresa May tells drugs firm to make a deal and end misery
13 June 2019 - Prime Minister Theresa May told MPs that the deal being proposed... a £108million-a-year contract... was fair and ...
Posted by Michael Wonder on 11 Jun 2019
MPs to debate cystic fibrosis drug Orkambi in Parliament
10 June 2019 - A debate is due to take place in Westminster about a drug for people living with ...
Posted by Michael Wonder on 11 Jun 2019
Orkambi row: government now considering Crown Use licensing
11 June 2019 - MPs call for radical solutions as deadlock remains. ...
Posted by Michael Wonder on 05 Jun 2019
Families create buyers club for cut-price cystic fibrosis drug
5 June 2019 - Stalemate in NHS talks over Orkambi leads parents to buy generic version from Argentina. ...
Posted by Michael Wonder on 15 May 2019
Cystic fibrosis drug campaign makes no progress in year
10 May 2019 - It is a year on from the delivery of more than 1,000 letters to Downing Street, ...
Posted by Michael Wonder on 14 Apr 2019
Cystic Fibrosis scandal: MP demands answers on delay of vital NHS drugs deal
11 April 2019 - Theresa May yesterday vowed to take action over the lack of an NHS deal for cystic fibrosis ...
Posted by Michael Wonder on 11 Mar 2019
Cystic fibrosis breakthrough: vital drug could be made available as early as next month
8 March 2019 - A wonder drug that could dramatically improve the lives of thousands of cystic fibrosis patients may be ...
Posted by Michael Wonder on 08 Mar 2019
Campaigners call for NHS access to Orkambi as MP inquiry gets underway
8 March 2019 - Patients and campaigners took to the streets in London yesterday demanding NHS access to Vertex’ cystic ...
Posted by Michael Wonder on 08 Mar 2019
High price of cystic fibrosis drug not political, firm's boss tells MPs
8 March 2019 - CEO of company that makes Orkambi denies being ‘political minion’ for Donald Trump. ...
Posted by Michael Wonder on 05 Mar 2019
How to fix a problem like Orkambi? Solutions suggested ahead of showdown
5 March 2019 - Approaches used in France and Germany could help break deadlock. ...
Posted by Michael Wonder on 04 Mar 2019
Vertex chief Jeffrey Leiden to weigh in on Orkambi inquiry
4 March 2019 - Vertex’s long-running spat with NHS England has amounted to a legal inquiry scheduled to begin this Thursday, ...
Posted by Michael Wonder on 14 Feb 2019
Cystic fibrosis breakthrough: hope for British sufferers as life-saving drug talks resume
14 February 2019 - Britain's cystic fibrosis sufferers have received fresh hope of receiving a life-saving drug after officials agreed to ...