Blog
RSS FeedPosted by Michael Wonder on 09 Feb 2021
Teen thriving on PHARMAC funded medicine
9 February 2021 - 14 year old Bruno Cettina is living his best life thanks to a medicine funded by PHARMAC. ...
Posted by Michael Wonder on 21 Dec 2020
Newly approved treatment could save a young child in Edmonton with a rare disease. It costs 2.8 million dollars per dose.
19 December 2020 - Reign Johnston is a happy baby who enjoys painting as much as playing with toys. His green ...
Posted by Michael Wonder on 03 Dec 2020
Secukinumab in children with plaque psoriasis: study unsuitable for benefit assessment
3 December 2020 - Inappropriate treatment in the control arm makes fair comparison impossible. ...
Posted by Michael Wonder on 15 Nov 2020
Life-saving spinal muscular atrophy medicine to be made available to Australian babies
15 November 2020 - Access to a life-saving and life-changing medicine will soon be expanded for Australian children and infants with ...
Posted by Michael Wonder on 11 Nov 2020
Decision to widen access to treatments for juvenile idiopathic arthritis
11 November 2020 - PHARMAC is pleased to announce a decision to widen access to adalimumab and etanercept for the ...
Posted by Michael Wonder on 21 Oct 2020
Canadian baby with spinal muscular atrophy to get ‘world’s most expensive drug’
20 October 2020 - A little over a year ago, the idea of raising US$2.125 million to receive the “world’s ...
Posted by Michael Wonder on 17 Sep 2020
'Burning liquid fire': sick Aussies endure agonising injections while painless drug is available overseas
17 September 2020 - Every fortnight, 10-year-old Ciera Ayer is forced to endure hours of agony when she is injected ...
Posted by Michael Wonder on 14 Sep 2020
Stranded mum with dying daughter makes desperate plea to Jacinda Ardern
13 September 2020 - A distraught mum stuck in New Zealand with her dying daughter Stella amid the COVID pandemic ...
Posted by Michael Wonder on 12 Sep 2020
Kiwi mum pleads with PHARMAC to fund life-changing drug Spinraza for her two children
11 September 2020 - The mother of two young boys with a rare disease is begging PHARMAC to fund a ...
Posted by Michael Wonder on 11 Sep 2020
NSW boy with severe eczema says he’s ‘tired’ of living with illness as family ask for drug to be subsidised
11 September 2020 - The family of a young NSW boy suffering from a severe skin condition will have to fork ...
Posted by Michael Wonder on 10 Sep 2020
PHARMAC seeking views on widened access to juvenile idiopathic arthritis medicines
11 September 2020 - PHARMAC is looking at widening access to three funded treatments – adalimumab, etanercept and tocilizumab – to ...
Posted by Michael Wonder on 26 Jul 2020
'I need something to move forward,' says Edmonton mom waiting for approval for son's life saving treatment
24 July 2020 - The family of a little boy in need of a $3 million treatment says they have ...
Posted by Michael Wonder on 26 Jul 2020
Mother of teen with cystic fibrosis pleads for PHARMAC to fund new medication
26 July 2020 - Seventeen-year-old Rotorua teenager Osiris Daniels has been living in isolation his entire life, a necessary requirement ...
Posted by Michael Wonder on 10 Jun 2020
Hawke's Bay mum's heartbreak as PHARMAC refuses spinal muscular atrophy drug for her two kids
9 June 2020 - Skylah-Rose Shaw 8 and her brother Zayden Shaw 10 suffer from spinal muscular atrophy a disease that ...
Posted by Michael Wonder on 20 May 2020
B.C. teen with rare disease wins fight to receive costly drug from province
19 May 2020 - Health ministry won't explain change of heart in granting Miles Ambridge treatment for spinal muscular atrophy. ...