Blog
RSS FeedPosted by Michael Wonder on 04 Jul 2019
Spinraza access agreement extended
3 July 2019 - More children with the rare genetic disorder spinal muscular atrophy can now be treated with Spinraza after ...
Posted by Michael Wonder on 24 Jun 2019
England to fast-track tumour agnostic drugs like Vitrakvi – if the price is right
21 June 2019 - NHS England’s chief executive Simon Stevens was in Manchester this week at the NHS Confederation conference, ...
Posted by Michael Wonder on 19 Jun 2019
Game-changing cancer drugs which can attack all tumours will be fast-tracked by NHS
19 June 2019 - Game-changing cancer drugs which can attack all types of tumour will be fast-tracked by the NHS, ...
Posted by Michael Wonder on 18 Jun 2019
Buyers’ Club wants government support on Orkambi imports
17 June 2019 - Proposes three point plan to work round impasse. ...
Posted by Michael Wonder on 15 Jun 2019
Theresa May tells drugs firm to make a deal and end misery
13 June 2019 - Prime Minister Theresa May told MPs that the deal being proposed... a £108million-a-year contract... was fair and ...
Posted by Michael Wonder on 11 Jun 2019
MPs to debate cystic fibrosis drug Orkambi in Parliament
10 June 2019 - A debate is due to take place in Westminster about a drug for people living with ...
Posted by Michael Wonder on 05 Jun 2019
Families create buyers club for cut-price cystic fibrosis drug
5 June 2019 - Stalemate in NHS talks over Orkambi leads parents to buy generic version from Argentina. ...
Posted by Michael Wonder on 27 May 2019
NHS England wants money back guarantee on Orkambi
24 May 2019 - Vertex resisting real-world data proposal. ...
Posted by Michael Wonder on 26 May 2019
Calls for 'life changing' drug Aimovig on NHS in England
24 May 2019 - People who suffer from chronic migraines are calling for a new drug to be offered on ...
Posted by Michael Wonder on 20 May 2019
Theresa May urges US makers of cystic fibrosis drug to strike ‘crucial’ deal with NHS
17 May 2019 - Theresa May last night urged US makers of a drug that prolongs life for cystic fibrosis sufferers ...
Posted by Michael Wonder on 16 May 2019
Mum delivers 65 roses to Downing Street in bid to speed up NHS availability of vital cystic fibrosis drugs
16 May 2019 - Calls for NHS access to potentially life-saving drugs are growing, one year to the day after ...
Posted by Michael Wonder on 15 May 2019
Cystic fibrosis drug campaign makes no progress in year
10 May 2019 - It is a year on from the delivery of more than 1,000 letters to Downing Street, ...
Posted by Michael Wonder on 14 Apr 2019
Cystic Fibrosis scandal: MP demands answers on delay of vital NHS drugs deal
11 April 2019 - Theresa May yesterday vowed to take action over the lack of an NHS deal for cystic fibrosis ...
Posted by Michael Wonder on 10 Apr 2019
#Orkambinow?
9 April 2019 - After a long standoff over CF treatment Orkambi, a deal looks imminent. ...
Posted by Michael Wonder on 29 Mar 2019
Cystic fibrosis scandal: drugs deal moves a step closer to saving children
27 March 2019 - Officials are set to meet again “soon” with US drugs giant Vertex to “break the current impasse” ...